The Salty Spoonie

Last night a friend made an excellent post on Instagram about the labour involved in being a disabled or chronically ill person and having able-bodied people constantly dish out unsolicited advice, appearance policing or thinly veiled insults disguised as treatment tips. She encouraged us to “bring on the salt”, I suggested a tee that read “salty”, one thing led to another and I ended up with a RedBubble store full of salty disability designs. ¯\_(ツ)_/¯

Black t shirt with "salty" printed in white
Salty – white text on a classic t shirt

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Top 5 hits of 2017

I was relieved when Gillian of Crafting a Rainbow announced it was time for the top 5 of 2017, as I’ve been hit by a virus that makes blogging new garments difficult. I have plenty of finished projects waiting to be photographed and blogged, but til then, here are my top 5 hits of 2017: Continue reading “Top 5 hits of 2017”

Under pressure – compression garments & POTS

As my POTS progresses, I’ve been trialling various interventions to reduce the effect it has on my quality of life, and sharing my findings with you along the way. You can read about my attempts to increase fluid and salt in my electrolyte drink mega-review. This time I’m looking at compression stockings, one of the most commonly recommended lifestyle interventions for dysautonomia. Continue reading “Under pressure – compression garments & POTS”

URGENT: flash sale at Lilu & Bey to aid Manus crisis (and other ways you can help)

Cat doll
Ginny the cat, on sale for $20

I, and many Australians, have been watching the human rights crisis unfold on Manus Island with horror. Refugees under the the “care” of the Australian government, who have been kept imprisoned in detention  centres for years, were abandoned with no food, water, or medicine. PNG police have been committing acts of brutality and violence against them – as we, the Australian public, have been for years with our complicity.

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So I watched Unrest

Omar Wasow carries his wife Jennifer Brea in a scene from Unrest.
There are many promotional stills from Unrest, but this gives me the most hope.

If you’ve been involved at all with the ME/CFS community, you will be well aware of the significance of the release of Unrest, the independent documentary by debut filmmaker Jennifer Brea about the illness. If not, it’s hard to overstate the important of this film for people with ME/CFS. Ours is a story that is not told in the mainstream media, or one that is so poorly represented that it usually makes a mockery of our lives. Continue reading “So I watched Unrest”

Refashioned jumpsuit

A few weeks back I bought this delish viscose jumpsuit at the op shop. I don’t know what I was thinking, really – I’m too tall for anything one-piece to fit me, and this was no exception. The jumpsuit gave me a mega-wedgie, front and back (you’re welcome for the visual), so I threw it in the donation pile.

Woman in short playsuit.
Staple the Label Qualia Playsuit. It definitely didn’t look like this on me!

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