Story published on The Mighty – A Grief That Never Ends

Hi folks! Just an update that I’ve had another story published on The Mighty. It is about the continual process of grieving through chronic illness, and how so few people can really cope with others’ grief.

You can read more on: The Ongoing Process of Grief When You Have a Chronic Illness.

New post on The Mighty

I had another piece published on The Mighty today: a Christmas wishlist for a chronically ill person. It’s slightly different to what I wished for as a child, writing letters to Santa!

You can read What I Wish For Most This Christmas as Someone With Severe Myalgic Encephalomyelitis on The Mighty.

 

New piece published on The Mighty

Just a heads up that The Mighty have published another of my pieces, “Why I Think ‘Chronic Fatigue Syndrome’ Needs a Name Change”. It is a summarised form of a section from my Dummies’ Guide to ME/CFS. Of course, the first comment on The Mighty’s post on their Facebook page was a derogatory insult regarding my authorship which delegitimised my experience with this illness. We still have a long ways to go, folks.

12-11-16themighty

My writing elsewhere

Hi folks! I’ve been a busy little beaver writing for other sources (I have a lot to say!). I’m pleased to announce today I had a piece on the intersection of gender and disability published today on Adios Barbie, called: The Trauma of Not Being Seen: Invisible Disability and Modern Day Hysteria. I’m sure there are plenty of female spoonies who can relate to being treated like a hysterical, fainting 19th century stereotype by their supposedly 21st-century doctors.

The Mighty was also good enough to repost one of my blog articles about gaslighting as We Cannot Continue to Let Doctors ‘Gaslight’ Chronic Illness Patients. I am pleased to be able to spread the word about the abuse I’ve experienced at the hands of the medical profession in the hopes that it will make it less likely to happen in the future.

Inspiration porn, cripple punk and why I refuse to be grateful for my chronic illness

An enamel brooch in the shape of a love heart. The banner across the brooch reads
Disabled enamel pin. You can purchase from NormalLand on Etsy. Isn’t it perfect?

Today I’m sharing with you another piece I had published on The Mighty. Firstly, if you are a spoonie, or know someone who is, check that website out! It has contributions from people with all different abilities and illnesses speaking from the heart about their experiences. You’ll get lost in a rabbit warren of amazing stories, believe me.

After this piece was published, I received many comments complimenting me on my ability to make the best out of my illness. I’m not sure that was my intent when writing. Sometimes you have to laugh at the ridiculous situations your illness places you in (strolling naked along a hospital corridor after being showered by nurses? Anyone?), and I have grown as a person since becoming sick. However, this doesn’t mean I have to be grateful for my illness, or enjoy it.

Continue reading “Inspiration porn, cripple punk and why I refuse to be grateful for my chronic illness”

Beginnings

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More scenes from the Hopkins River

A post shared by Siobhan Simper (@siobhansimper) on

Above: my island home

Hello! And welcome. I’m Siobhan, a 20-something living in country Victoria, and I’ll be blogging about life with severe CFS/ME, with some fun crafty creations thrown in along the way. Having CFS/ME turned my life upside down, and yet severe cases are underrepresented in the media and popular discourse. I want to change that.

Without further ado, here is an unedited version of a piece which was recently published on The Mighty, about life with severe ME/CFS. Enjoy, and feel free to drop in anytime!

Continue reading “Beginnings”