Basically what the title says! After years of waiting and applying and providing evidence and having multiple breakdowns because of it, I’m finally part of the NDIS (National Disability Insurance Scheme, basically now the only way for disabled people to access social supports in Australia).
I received my “access request met” letter a few months ago, but couldn’t bring myself to announce it here in case it was some elaborate hoax. I’m still half certain that there is someone hiding behind the bushes out front, waiting for the day I expect a support to arrive so they can leap out with video camera in hand, yelling “PUNK’D!”*
For those following along with my NDIS progress (or lack thereof), I was recently contacted by the NDIA internal review team to inform me that my review was beginning – 14 months after I submitted my request for a review, and over 2 years after initially applying for NDIS. The system works, right!?!?
Hello! As we’re now thoroughly into winter, I’ve been dreaming up knitting projects to keep me warm. I just finished an interim hat from scraps, which hopefully I will blog when I block it.* Next up is a jumper.
Being chronically ill is much like juggling countless juggling balls, only to realise no one has ever actually taught you to juggle, and you have to muddle on as best you can on your own, with the threat of the full weight of your life’s obligations coming crashing down on you at any given moment.* Some assume that having a chronic illness absolves you from mundane life tasks, but the opposite is true: you have to deal with the same challenges everyone else does, with limited resources, as well as the other shit chronic illness throws at you.
It’s been a while since I did a personal health update, largely because I just don’t like thinking about it any more. I was reminded of this fact when I had an appointment with a social worker yesterday. She is an advocate who I employed to assist me with my NDIS application (though she has nothing to do with NDIS herself, nor does her agency in any way, and therefore has no say in their assessment of me).
I suspected it would happen, right from the beginning when I planned my trip to Geelong. It would be a complete disaster or a wild success, but I figured I was in a downward spiral anyway so I may as well go out with a bang. And that I did.