It wasn’t supposed to be like this

Warning: contains GIFs

It’s my 10 year high school reunion this weekend, which is a shitful time for anyone, let alone someone with a chronic illness. Just the thought of it acts as a reminder that my life is nowhere near where I thought it would be, or where I want it to be now.

Romy & Michele from Romy and Michele's High School Reunion
Everyone tells me I should Romy & Michele it, but I’ve actually never seen that movie (and don’t plan to).

Continue reading “It wasn’t supposed to be like this”

Beginning my FODMAPs journey

Content warning: contains discussion of dietary restrictions

 

You know when you’ve been putting something off for so long that you just can’t ignore it any longer? That was me and FODMAPs. There were so many reasons I couldn’t do it: it’s complicated, it’s expensive, I don’t have the brainpower, I can’t cook (!). A few weeks ago, I finally reached the tipping point where my desire to not be in constant, crippling abdominal pain overwhelmed all these reasons, and I gave the low-FODMAP diet a go.

Fermentable, oligosaccharides, disaccharides, monosaccharides and polyols

Continue reading “Beginning my FODMAPs journey”

Do you want some sickness on top of your sickness?

Warning: contains GIF

Above: an image from Me Made May. I had to cut the month short (documenting at least) due to illness.

I’ve been a bit quiet lately as I’ve been down and out with this virus that’s going around. I know, I know – there’s nothing more tedious than someone complaining about having a cold, especially on their blog! But viruses hit the chronically ill a lot harder than they do able-bodied folks. Continue reading “Do you want some sickness on top of your sickness?”

Health update: relapse upon relapse

Warning: contains GIFs

Hi folks! A while back, I wrote about the relapse I had encountered (in October!). I figured it was time for another health update.

At the time, I had gone from being able to drive, take myself out, go for walks, and potter around shops by myself, to not being able to walk the length of my driveway. Driving is out of the question, my body lost a huge amount of strength (which frankly, I couldn’t afford to lose) and all my activities became closely supervised.

The Grinch. Text: hate, hate, hate....double hate! LOATHE ENTIRELY!

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An Extensive Knitted Layette, and Reflections on a Life Unlived

Last time I shared part of a knitted and sewn layette I made for my cousin’s baby. In this post, I’ll show you the garments I knit and some reflections on creating them – you can check out the other post for the sewn creations (yeh, I got a bit carried away).

My knitted layette is as deliberately co-ordinated as my sewn layette was haphazardly thrown together. It consists of a matching cardigan, hat and booties. You can click on the links under the photos for my Ravelry notes and pattern information. I loved knitting (and crocheting) this layette, and it gave me cause to reflect on the influence my extended family has had on my life.

A green and white handknitted layette: cardigan, hat and booties.

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Top 5 of 2016

Every year, Gillian of Crafting a Rainbow hosts a Top 5 of 2016 round-up, whereby members of the online sewing community share their top 5 hits, misses, highlights, reflections and goals. I haven’t been blogging long enough to do a full post on each category, so today I’ll share one from each.

Hits

A woman stands in a garden, wearing a white button up shirt and red skinny pants.

My definite hit for the year are my Style Arc Elle Pants. Made up in cherry red and berry purple bengaline, these pants are comfortable, stylish and easy to wear. They’ve also opened up the rabbit hole that is sewing stretch pants! My only complaint is that they are made from such a lightweight, cool fabric, I can only wear them in the warmer months. Continue reading “Top 5 of 2016”

“I’m not saying you’re ‘MAD'”, and other lies doctors tell me – on somatic symptom disorder

Content warning: contains GIFs, discussion of abuse and gaslighting

If you’ve been following along with this blog so far, you will know that my already poor health has taken a sharp turn for the worse. The decline is so sudden, dramatic and long-lasting, that I have started to consider that there may be some underlying medical condition affecting my health other than ME/CFS. As it had been some years since a full medical review, I decided to try a few different GPs in town for new ideas.

Dr Spacemen from 30 Rock speaks on phone. Text: medicine is not a science

Continue reading ““I’m not saying you’re ‘MAD’”, and other lies doctors tell me – on somatic symptom disorder”