New piece published on The Mighty

Just a heads up that The Mighty have published another of my pieces, “Why I Think ‘Chronic Fatigue Syndrome’ Needs a Name Change”. It is a summarised form of a section from my Dummies’ Guide to ME/CFS. Of course, the first comment on The Mighty’s post on their Facebook page was a derogatory insult regarding my authorship which delegitimised my experience with this illness. We still have a long ways to go, folks.

12-11-16themighty

A Dummies’ Guide to ME/CFS: Part V, Research & Conclusion

Warning: contains GIFs

Each week, I am publishing a part in a series about ME/CFS. This is Part V, in which I discuss current research into ME/CFS, and conclude the series. You can find links to the other posts in the series at the bottom of this post. Thanks for reading!

Last week, I discussed the negative attitudes held towards ME/CFS by many healthcare professionals, and the implications of the name “chronic fatigue syndrome.” This week, I’m wrapping it up with research and suggestions for the newly diagnosed. Thanks for sticking with me, folks!

Continue reading “A Dummies’ Guide to ME/CFS: Part V, Research & Conclusion”

Living with Bob: lack of accessibility for rural patients

Hi guys! The lovely Michelle from Living with Bob is running a series of guest posts for dysautonomia awareness month. She was kind enough to publish a piece I wrote about the unique challenges rural patients face in accessing adequate healthcare.

Princes Highway Ulladulla, 1920s
It’s a long way to the nearest city. Photo may be slightly out of date.

Continue reading “Living with Bob: lack of accessibility for rural patients”

A Dummies’ Guide to ME/CFS: Part IV, Prejudice & What’s in a Name

Warning: contains a GIF

Each week, I am publishing a part in a series about ME/CFS. This is Part IV, in which I discuss the prejudices faced by ME/CFS sufferers, and its problematic name (which may or may not be as bad as crapweeds and stenchblossoms). You can find links to the other posts in the series at the bottom of this post.

Last week, I explored the limited treatment options available to ME/CFS sufferers. This week, I will explain what causes said lack of options, namely, prejudices held by the medical community and its problematic nomenclature.

Continue reading “A Dummies’ Guide to ME/CFS: Part IV, Prejudice & What’s in a Name”

My writing elsewhere

Hi folks! I’ve been a busy little beaver writing for other sources (I have a lot to say!). I’m pleased to announce today I had a piece on the intersection of gender and disability published today on Adios Barbie, called: The Trauma of Not Being Seen: Invisible Disability and Modern Day Hysteria. I’m sure there are plenty of female spoonies who can relate to being treated like a hysterical, fainting 19th century stereotype by their supposedly 21st-century doctors.

The Mighty was also good enough to repost one of my blog articles about gaslighting as We Cannot Continue to Let Doctors ‘Gaslight’ Chronic Illness Patients. I am pleased to be able to spread the word about the abuse I’ve experienced at the hands of the medical profession in the hopes that it will make it less likely to happen in the future.

A Dummies’ Guide to ME/CFS: Part III, “Treatment”

Each week, I am publishing a part in a series about ME/CFS. This is Part III, in which I discuss what limited treatment is available to ME/CFS sufferers. You can find links to the other posts in the series at the bottom of this post.

Last week, I discussed the severity of symptoms of this illness, and shared some stories of severely affected sufferers. This week will be less intense, as I detail the treatment options available for ME/CFS (spoilers: there are none).

Continue reading “A Dummies’ Guide to ME/CFS: Part III, “Treatment””

A Dummies’ Guide to ME/CFS: Part II, Prognosis, Severity & Scales

Content warning: abuse

Each week, I am publishing a part in a series about ME/CFS. This is Part II, in which I discuss how ME/CFS can affect patient’s lives, and discuss in detail the experiences of severely affected patients. You can find links to the other posts in the series at the bottom of this post.

Last week, I introduced you to the horrifying and complex disease that is ME/CFS. Today I’d like to walk you through how this disease can affect patient’s lives, with some first hand experiences from severely affected sufferers, myself included. This meant delving back into traumatic experiences that still affect me every day. However, I am always grateful when other sufferers share their stories, so it is my turn to do the same.

Continue reading “A Dummies’ Guide to ME/CFS: Part II, Prognosis, Severity & Scales”