It’s been a while since I did a personal health update, largely because I just don’t like thinking about it any more. I was reminded of this fact when I had an appointment with a social worker yesterday. She is an advocate who I employed to assist me with my NDIS application (though she has nothing to do with NDIS herself, nor does her agency in any way, and therefore has no say in their assessment of me).
My ability to read books comes and goes, but definitely spends more time in the “gone” category! At least compared to the regular nightly reading I used to accomplish with ease. Two books I completed sometime last year were Ask Me About My Uterus by Abby Norman and Doing Harm by Maya Dusenbery. Both books were about women’s experiences of chronic illness, written by women with chronic illness. They approached the topic from entirely different angles, which made for little overlap between them. Continue reading “Book review: Ask Me About My Uterus & Doing Harm”
It seems little has changed since I first wrote about cripping up in 2017. Hollywood still makes movies about, but not with, disabled people, and non-disabled actors are still cast in disabled roles as a fast-track to winning an Oscar.
I’m pleased to report there has been more sympathetic coverage of ME/CFS in the Australian media. Last week, Today screened a short segment on the illness, featuring Dr Heidi Nicholl, CEO of Emerge Australia and sufferer Jane Barclay.
It’s been a while since I updated my electrolyte drink mega-review, which was lacking in powder drinks. I’ve rectified that by adding 5 more drinks to the table: Endura Rehydration Low Carb Fuel, Endura Rehydration Performance Fuel, Hydralyte Sports Powder, Ultima Replenisher Electrolyte Powder, and my old favourite, Powerade Zero. Continue reading “More electrolyte drink reviews”
Last fortnight, Australian talk show Insight screened an episode about ME/CFS. The panel included ME/CFS patients, parents of children with ME/CFS, healthcare professionals and researchers in the field. The episode had a particular focus on the benefits vs harms of graded exercise therapy (GET), which I have already written about at length.
I suspected it would happen, right from the beginning when I planned my trip to Geelong. It would be a complete disaster or a wild success, but I figured I was in a downward spiral anyway so I may as well go out with a bang. And that I did.