I’m pleased to report there has been more sympathetic coverage of ME/CFS in the Australian media. Last week, Today screened a short segment on the illness, featuring Dr Heidi Nicholl, CEO of Emerge Australia and sufferer Jane Barclay.
Tag: mecfs
More electrolyte drink reviews
It’s been a while since I updated my electrolyte drink mega-review, which was lacking in powder drinks. I’ve rectified that by adding 5 more drinks to the table: Endura Rehydration Low Carb Fuel, Endura Rehydration Performance Fuel, Hydralyte Sports Powder, Ultima Replenisher Electrolyte Powder, and my old favourite, Powerade Zero. Continue reading “More electrolyte drink reviews”
ME/CFS on SBS Insight
Last fortnight, Australian talk show Insight screened an episode about ME/CFS. The panel included ME/CFS patients, parents of children with ME/CFS, healthcare professionals and researchers in the field. The episode had a particular focus on the benefits vs harms of graded exercise therapy (GET), which I have already written about at length.
Reader, I crashed
I suspected it would happen, right from the beginning when I planned my trip to Geelong. It would be a complete disaster or a wild success, but I figured I was in a downward spiral anyway so I may as well go out with a bang. And that I did.
Trauma is the blurst (and so is the NDIS)
It’s been a shit few weeks. Months, really. My health has been irreversibly fucked up by my ill-fated trip to Geelong, yet I’ve still had to deal with every crisis life wants to throw at me. Continue reading “Trauma is the blurst (and so is the NDIS)”
This is a mobility aid
As I’m mostly in my wheelchair when out and about these days, I’ve been fielding questions (all good natured) about its use. I’m always happy to explain about the prevalence of ambulatory wheelchair users, but sometimes want for a simpler explanation. Kat from The Willows Work on Instagram provided one:
I use a wheelchair the same way I use a car: to get places that are farther than I can walk.
I repeat: I use a wheelchair the same way I use a car, to get places that are further than I can walk.
As well as offering a pithy response to those who enquire about mobility devices, Kat sparked a valuable discussion on the use of cars as mobility aids. I’ll certainly be using her line in the future.
Don’t let the bastards get you down
Or at least, that’s what I tell myself when I’m dealing with government agencies. “It’s their job to put you off.” “They make it so difficult you’ll give up – don’t let them.” “The systems are designed to exclude you, you have to fight for your rights.” But sometimes, it’s just all too hard.
