Unrest film available for preorder on iTunes

Movie poster for film "Unrest".

Unrest, the pivotal documentary made from bed by ME/CFS sufferer Jen Brea, is now available for preorder on iTunes. You may remember Jen’s TED talk,“What happens when you have a disease doctors can’t diagnose”, which I summarised on the blog earlier this year. Her movie proves to be just as honest, heart breaking and educational as her speech.

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Beginning my FODMAPs journey

Content warning: contains discussion of dietary restrictions

 

You know when you’ve been putting something off for so long that you just can’t ignore it any longer? That was me and FODMAPs. There were so many reasons I couldn’t do it: it’s complicated, it’s expensive, I don’t have the brainpower, I can’t cook (!). A few weeks ago, I finally reached the tipping point where my desire to not be in constant, crippling abdominal pain overwhelmed all these reasons, and I gave the low-FODMAP diet a go.

Fermentable, oligosaccharides, disaccharides, monosaccharides and polyols

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Electrolyte drink mega-review

Usually my POTS* is content to take the back stage and let ME/CFS run the show, but recently it has been asserting itself in a rather forceful manner. Sitting on raised chairs, showering and just existing seems to send my blood rushing from my head to my feet, leaving me spending a lot of time on the floor or against my dresser with my legs up to get that pesky blood back where it belongs.

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Handy responses to commonly heard phrases

Warning: contains GIFs.

Do you have a chronic illness? Have you heard the same tired comments 50 times already this year? (No, I’m not contagious, Jan.) Instead of having to think up answers to the same old questions time and time again, I’ve provided a handy guide for those phrases that crop up time and time again.

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Rest

I wish I could rest.

Real, deep, fulfilling rest. Laying my head down on a soft pillow and closing my eyes, without feeling the anvil resting on my chest. Sitting in the sun and listening to the birds in the trees, without feeling the heat of the sun’s rays set fire to my skin, my body scream from the exertion of my pose, and my mind in agony for being too long away from home. To just be – without being ill.

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An Illusory Sense of Control

My psychologist refers to it as “the moment you realise the world is not a safe place.” I prefer to see it as a realisation that you have no control over your life – that your carefully laid plains mean nothing, anything can happen to anyone at any given time, and there’s nothing you can do about it. For me, this realisation occurred when I first fell ill 7 years ago, and continues to occur again and again as this illness unravels everything I thought I knew about life.

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