A Dummies’ Guide to ME/CFS: Part V, Research & Conclusion

Warning: contains GIFs

Each week, I am publishing a part in a series about ME/CFS. This is Part V, in which I discuss current research into ME/CFS, and conclude the series. You can find links to the other posts in the series at the bottom of this post. Thanks for reading!

Last week, I discussed the negative attitudes held towards ME/CFS by many healthcare professionals, and the implications of the name “chronic fatigue syndrome.” This week, I’m wrapping it up with research and suggestions for the newly diagnosed. Thanks for sticking with me, folks!

Continue reading “A Dummies’ Guide to ME/CFS: Part V, Research & Conclusion”

A Dummies’ Guide to ME/CFS: Part IV, Prejudice & What’s in a Name

Warning: contains a GIF

Each week, I am publishing a part in a series about ME/CFS. This is Part IV, in which I discuss the prejudices faced by ME/CFS sufferers, and its problematic name (which may or may not be as bad as crapweeds and stenchblossoms). You can find links to the other posts in the series at the bottom of this post.

Last week, I explored the limited treatment options available to ME/CFS sufferers. This week, I will explain what causes said lack of options, namely, prejudices held by the medical community and its problematic nomenclature.

Continue reading “A Dummies’ Guide to ME/CFS: Part IV, Prejudice & What’s in a Name”

A Dummies’ Guide to ME/CFS: Part III, “Treatment”

Each week, I am publishing a part in a series about ME/CFS. This is Part III, in which I discuss what limited treatment is available to ME/CFS sufferers. You can find links to the other posts in the series at the bottom of this post.

Last week, I discussed the severity of symptoms of this illness, and shared some stories of severely affected sufferers. This week will be less intense, as I detail the treatment options available for ME/CFS (spoilers: there are none).

Continue reading “A Dummies’ Guide to ME/CFS: Part III, “Treatment””

A Dummies’ Guide to ME/CFS: Part II, Prognosis, Severity & Scales

Content warning: abuse

Each week, I am publishing a part in a series about ME/CFS. This is Part II, in which I discuss how ME/CFS can affect patient’s lives, and discuss in detail the experiences of severely affected patients. You can find links to the other posts in the series at the bottom of this post.

Last week, I introduced you to the horrifying and complex disease that is ME/CFS. Today I’d like to walk you through how this disease can affect patient’s lives, with some first hand experiences from severely affected sufferers, myself included. This meant delving back into traumatic experiences that still affect me every day. However, I am always grateful when other sufferers share their stories, so it is my turn to do the same.

Continue reading “A Dummies’ Guide to ME/CFS: Part II, Prognosis, Severity & Scales”

A Dummies’ Guide to ME/CFS: Part I, Intro

It has come to my attention that while I write this blog from the perspective of someone suffering from ME/CFS, there may be many reading who are not entirely familiar with the disease. So I decided to write a guide to ME/CFS for the uninitiated, covering everything from symptoms to prognosis, treatment and research. I hope it will contain some information for the seasoned spoonie too.

I can’t pretend to be an expert – this series is based on my 6 years of living with the disease, as well as reading books by authoritative experts in the field and other research (such as patient surveys, ME/CFS organisations, news articles, books and journal articles). It is my experience that patients know far, far more about their illnesses than many medical professionals, solely based on their experience living with the illness 24/7.

Continue reading “A Dummies’ Guide to ME/CFS: Part I, Intro”