For those following along with my NDIS progress (or lack thereof), I was recently contacted by the NDIA internal review team to inform me that my review was beginning – 14 months after I submitted my request for a review, and over 2 years after initially applying for NDIS. The system works, right!?!?
Looking back at my photos, I realised that I bought some compression socks (and made a quick post on Instagram about them) many months ago, but they never made it to the blog. I’ve already written a fairly lengthy post on compression stockings, with reviews of everything from sports compression tights (2XUs, Skins etc) to Juzo compression stockings to cheap beige maternity stockings, so if you want to know the basics of compression garments for the treatment of POTS, head over there first.
Warning: contains GIFs
Being chronically ill is much like juggling countless juggling balls, only to realise no one has ever actually taught you to juggle, and you have to muddle on as best you can on your own, with the threat of the full weight of your life’s obligations coming crashing down on you at any given moment.* Some assume that having a chronic illness absolves you from mundane life tasks, but the opposite is true: you have to deal with the same challenges everyone else does, with limited resources, as well as the other shit chronic illness throws at you.
It’s been a while since I did a personal health update, largely because I just don’t like thinking about it any more. I was reminded of this fact when I had an appointment with a social worker yesterday. She is an advocate who I employed to assist me with my NDIS application (though she has nothing to do with NDIS herself, nor does her agency in any way, and therefore has no say in their assessment of me).
My ability to read books comes and goes, but definitely spends more time in the “gone” category! At least compared to the regular nightly reading I used to accomplish with ease. Two books I completed sometime last year were Ask Me About My Uterus by Abby Norman and Doing Harm by Maya Dusenbery. Both books were about women’s experiences of chronic illness, written by women with chronic illness. They approached the topic from entirely different angles, which made for little overlap between them. Continue reading “Book review: Ask Me About My Uterus & Doing Harm”
It seems little has changed since I first wrote about cripping up in 2017. Hollywood still makes movies about, but not with, disabled people, and non-disabled actors are still cast in disabled roles as a fast-track to winning an Oscar.
I’m pleased to report there has been more sympathetic coverage of ME/CFS in the Australian media. Last week, Today screened a short segment on the illness, featuring Dr Heidi Nicholl, CEO of Emerge Australia and sufferer Jane Barclay.