For those new to ME/CFS, I’ve published a five-part Dummies’ Guide to ME/CFS on my blog, which covers everything from statistics, to treatment, severe ME and the trouble with its name.
Emerge Australia: the ME/CFS association of Australia. Provides information and advocates for ME/CFS sufferers. If you become a member, they publish a regular magazine. Used to be more interested in advocacy than they are now, but still the first stop for anyone in Australia suffering from ME/CFS.
Griffith Centre for Neuroimmunology: based in Queensland. Does ground-breaking research into the biological markers of ME/CFS. Their published papers are well worth reading if you have the time or spoons. They have also created the CliniHelp app, a way for chronically ill people to track their symptoms. You can donate to support their work.
Alison Hunter Memorial Foundation: an incredible group which has advocated forME/CFS since 1998. Founded in memorial of Alison Hunter, who passed from this brutal disease aged 19. Most of their fundraising work is now directed towards Griffith.
A Sudden Illness by Laura Hillenbrand: essential reading for anyone suffering fromME/CFS, their partners, family and friends. I reread it frequently, and it never fails to take my breath away. She has written books such as Seabiscuit and Unbroken, and her health seems to have improved markedly in recent years.
Living with M.E. by Charles Shepherd: a comprehensive overview ofME/CFS by a UK GP who has suffered from it himself. It is one of the few books which I have found helpful and representative of my experience with the illness.
For those interested in coping with chronic illness from a mindfulness perspective, Toni Bernhard has written three books on the topic: How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers; How to Wake Up: A Buddhist-Inspired Guide to Navigating Joy and Sorrow; and How to Live Well with Chronic Pain and Illness: A Mindful Guide. You can also read her blog on Psychology Today, Turning Straw Into Gold.
The M.E. Association (UK) is full of information and offers a support line.
In Victoria, Australia, Maurice Blackburn offer a free legal aid service for those with disabilities. They also run seminars on your rights as a disabled person. Contact them if you are in a legal quandary (such as a battle with Centrelink).
I have a few vintage diagram patterns uploaded on Flickr. You follow the measurements indicated on the diagram, filling in your own measurements, for perfectly-fitted lingerie. Click the individual pictures below or browse the album.
I’ve scanned in some vintage knitting pattern booklets for all to enjoy. You can find them on my Flickr or by clicking the images below.