Each week, I am publishing a part in a series about ME/CFS. This is Part III, in which I discuss what limited treatment is available to ME/CFS sufferers. You can find links to the other posts in the series at the bottom of this post.
Last week, I discussed the severity of symptoms of this illness, and shared some stories of severely affected sufferers. This week will be less intense, as I detail the treatment options available for ME/CFS (spoilers: there are none).
Last time, I shared with you a few dresses I’d made for my friends. I felt this particular dress deserved a post of its own.
This dress is my pièce de résistance – a knock off the Lindy Bop Ophelia dress, drafted from New Look 6773. It was made from Spotlight poly poplin. Before you ask, I am aware that Gertie produced a pattern for Butterick (5882) which is similar in style to the Ophelia. I did consider using it, but the bust piece is so small that it looks less like a design feature and more like a pair of small birds landed on the model’s chest.
Each week, I am publishing a part in a series about ME/CFS. This is Part II, in which I discuss how ME/CFS can affect patient’s lives, and discuss in detail the experiences of severely affected patients. You can find links to the other posts in the series at the bottom of this post.
Last week, I introduced you to the horrifying and complex disease that is ME/CFS. Today I’d like to walk you through how this disease can affect patient’s lives, with some first hand experiences from severely affected sufferers, myself included. This meant delving back into traumatic experiences that still affect me every day. However, I am always grateful when other sufferers share their stories, so it is my turn to do the same.
I am very lucky to have lovely friends who are not only infinitely more gorgeous than me*, but also let me sew for them. As someone who is mainly housebound, I don’t have the opportunity to dress up for special occasions. To be able to sew for people who will get out and about in fancy clothes is incredibly cathartic, as it indulges my whim to sew special garments which I know will get good wear (unlike my formal clothes, which sit unloved in my wardrobe). It is also a helpful mental coping tool, as it forces my mind out of my situation, in which I feel trapped, and into the outside world.
Hi folks! Just a short note to say I had an opinion piece published in my local paper about disability access in Warrnambool. The state of shop access and disabled parking bays in town is abysmal, yet with council elections coming up, no candidate has made disability advocacy a priority. I want that to change.
It has come to my attention that while I write this blog from the perspective of someone suffering from ME/CFS, there may be many reading who are not entirely familiar with the disease. So I decided to write a guide to ME/CFS for the uninitiated, covering everything from symptoms to prognosis, treatment and research. I hope it will contain some information for the seasoned spoonie too.
I can’t pretend to be an expert – this series is based on my 6 years of living with the disease, as well as reading books by authoritative experts in the field and other research (such as patient surveys, ME/CFS organisations, news articles, books and journal articles). It is my experience that patients know far, far more about their illnesses than many medical professionals, solely based on their experience living with the illness 24/7.
Any sewing aficionado not living under a rock will be aware of McCall’s 6696, their famous shirtdress pattern. Gorgeousvariations abound online, and for good reason – it seems to be one of those unicorn patterns that looks good on justaboutanyone. Except me, of course.