A Dummies’ Guide to ME/CFS: Part IV, Prejudice & What’s in a Name

Warning: contains a GIF

Each week, I am publishing a part in a series about ME/CFS. This is Part IV, in which I discuss the prejudices faced by ME/CFS sufferers, and its problematic name (which may or may not be as bad as crapweeds and stenchblossoms). You can find links to the other posts in the series at the bottom of this post.

Last week, I explored the limited treatment options available to ME/CFS sufferers. This week, I will explain what causes said lack of options, namely, prejudices held by the medical community and its problematic nomenclature.

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Style Arc Elle + more Burda love

Warning: contains a GIF

Lately I seem to be catching up on trends – first McCall’s 6696 shirtdress, now Style Arc Elle pants. Again, this pattern has been doing the rounds for a while and produces consistently good results. There are lots of fabulous versions out there, but I consider Lara from Thornberry my Style Arc style inspiration. Her co-ordinated outfits made from Style Arc patterns were impetus enough for me to give Style Arc a try.

A woman stands in a garden, wearing a white button up shirt and red skinny pants.
Check out the blossoms on our pear tree!

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My writing elsewhere

Hi folks! I’ve been a busy little beaver writing for other sources (I have a lot to say!). I’m pleased to announce today I had a piece on the intersection of gender and disability published today on Adios Barbie, called: The Trauma of Not Being Seen: Invisible Disability and Modern Day Hysteria. I’m sure there are plenty of female spoonies who can relate to being treated like a hysterical, fainting 19th century stereotype by their supposedly 21st-century doctors.

The Mighty was also good enough to repost one of my blog articles about gaslighting as We Cannot Continue to Let Doctors ‘Gaslight’ Chronic Illness Patients. I am pleased to be able to spread the word about the abuse I’ve experienced at the hands of the medical profession in the hopes that it will make it less likely to happen in the future.

A Dummies’ Guide to ME/CFS: Part III, “Treatment”

Each week, I am publishing a part in a series about ME/CFS. This is Part III, in which I discuss what limited treatment is available to ME/CFS sufferers. You can find links to the other posts in the series at the bottom of this post.

Last week, I discussed the severity of symptoms of this illness, and shared some stories of severely affected sufferers. This week will be less intense, as I detail the treatment options available for ME/CFS (spoilers: there are none).

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Lindy Bop Ophelia knock-off (or why I despise drafting)

A woman poses in a retro car. She wears a 50s inspired shelf bust dress, kimono jacket and petticoats.
BABE.

Last time, I shared with you a few dresses I’d made for my friends. I felt this particular dress deserved a post of its own.

This dress is my pièce de résistance – a knock off the Lindy Bop Ophelia dress, drafted from New Look 6773. It was made from Spotlight poly poplin. Before you ask, I am aware that Gertie produced a pattern for Butterick (5882) which is similar in style to the Ophelia. I did consider using it, but the bust piece is so small that it looks less like a design feature and more like a pair of small birds landed on the model’s chest.

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A Dummies’ Guide to ME/CFS: Part II, Prognosis, Severity & Scales

Content warning: abuse

Each week, I am publishing a part in a series about ME/CFS. This is Part II, in which I discuss how ME/CFS can affect patient’s lives, and discuss in detail the experiences of severely affected patients. You can find links to the other posts in the series at the bottom of this post.

Last week, I introduced you to the horrifying and complex disease that is ME/CFS. Today I’d like to walk you through how this disease can affect patient’s lives, with some first hand experiences from severely affected sufferers, myself included. This meant delving back into traumatic experiences that still affect me every day. However, I am always grateful when other sufferers share their stories, so it is my turn to do the same.

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Vintage sheets, friends and frocks, oh my!

I am very lucky to have lovely friends who are not only infinitely more gorgeous than me*, but also let me sew for them. As someone who is mainly housebound, I don’t have the opportunity to dress up for special occasions. To be able to sew for people who will get out and about in fancy clothes is incredibly cathartic, as it indulges my whim to sew special garments which I know will get good wear (unlike my formal clothes, which sit unloved in my wardrobe). It is also a helpful mental coping tool, as it forces my mind out of my situation, in which I feel trapped, and into the outside world.

A fit and flare dress on a mannequin, in a vintage floral print.

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