Hi folks! Just an update that I’ve had another story published on The Mighty. It is about the continual process of grieving through chronic illness, and how so few people can really cope with others’ grief.
One of the greatest burdens of having a disability is the oft-repeated myth that in being disabled, we are ourselves a burden. That the lives of the disabled are by definition, less worthy than those of able-bodied people, and that any attempt to accomodate us is a praise-worthy deviation from the norm, rather than a basic standard of behaviour.
This is another in a series of summertops I’ve been sewing. The fabric is a gorgeous rayon from the Spotlight $2/m clearance table. I usually don’t wear much black, but the gem-like colours in the pattern were too entrancing to resist.
You can’t go very long living with a chronic illness without hearing the word “deconditioning” whispered in your ear: by doctors, physios, and society at large. “You MUST exercise,” they say, “or your muscles will waste away to nothing. Don’t you want to get better?” However, as important a role exercise plays in chronic illness management – and I do not deny it has a role to play – I believe that an overemphasis on exercise and deconditioning can be a distraction from seeking real treatment and places the onus of illness squarely on the patient.
Luckily for you (and me!), their dad is an ace photographer, and took some beautiful photos of Freya and Eliza wearing their dresses at the Port Fairy beach. These photos certainly brightened up my day, and I hope they have the same effect on you. Enjoy!
I’ve been commenting and chatting to people about the Named Kielo Dress I made for several months now, so I figured it was time to bite the bullet and actually blog the darn thing! This story, I believe, began back in November, when Mads suggested I try Named Patterns. She rightly assumed I would enjoy their style and draft, and I have been especially pleased with the garments I’ve made from their line, the Sointu Kimono Tee and the Inari Tee Dress. I am equally happy with the Kielo Dress!