It has come to my attention that while I write this blog from the perspective of someone suffering from ME/CFS, there may be many reading who are not entirely familiar with the disease. So I decided to write a guide to ME/CFS for the uninitiated, covering everything from symptoms to prognosis, treatment and research. I hope it will contain some information for the seasoned spoonie too.
I can’t pretend to be an expert – this series is based on my 6 years of living with the disease, as well as reading books by authoritative experts in the field and other research (such as patient surveys, ME/CFS organisations, news articles, books and journal articles). It is my experience that patients know far, far more about their illnesses than many medical professionals, solely based on their experience living with the illness 24/7.
Any sewing aficionado not living under a rock will be aware of McCall’s 6696, their famous shirtdress pattern. Gorgeousvariations abound online, and for good reason – it seems to be one of those unicorn patterns that looks good on justaboutanyone. Except me, of course.
Being a lover of dresses and shirt dresses in particular, I’d been wanting to make M6696 for a long time. I even had the perfect vintage doona cover to make it from. Unfortunately (and predictably), as soon as I put sleeves on my muslin, I couldn’t move my arms – the chest was far too tight, all around my shoulders. I’d already busted my ass making adjustments, and after I’d futzed around with the muslin, I concluded that there was no way my hulk back would fit in this pattern. So I turned to my trusty Burda instead.
This winter, I knit a pleasingly large number of accessories. Most were from stash yarn, meaning I spent basically no money and received hours of fun and some fab hats and scarves. What I knit (click through to the Rav project page for more, you can follow along at shibz):
Welcome back. In Part I, I discussed drafting errors, grafts and crotches in indie patterns. In Part II, I finally utilise my psyc degree for completely useless purposes and share sordid stories of brand loyalty. For those with visual difficulties, there is a GIF at the end of the post.
Indie pattern company lovers: I get the hype, I really do. Being a member of several online communities that have an inclination to cult-like behaviour, I have seen and participated in many trends which were little more than clever marketing campaigns. I have seen knitting lovers fight for the right to purchase $100+ skeins of yarn. On buy swap sell groups, brand lovers will line up to purchase a stained $200 dress, or bid each other upwards of $1000 for a jacket that cost $300 retail. I’ve even sold crotch-stained tights to a diehard Gorman lover.* I’VE SEEN SOME SHIT GUYS.**
Warning: this is a long post, as I coalesce thoughts that I’ve had for a long time into words. I’m sharing this in two parts, as it ended up much longer than I expected. Bear with me – or not!
Indie sewing patterns: you either love them or you….love them. In the online sewing community, there seems to be little choice: the narrative is one of the Nasty Big 4 Corporations (McCall’s, Simplicity, Vogue and Butterick, alternately known as McVoguerick) wielding their industrial might to crush the little guy, indie pattern companies. They are the hero of this story, the hard-working small business owners come good. For a long while now, I’ve suspected that the success of indie pattern companies is built more on hype than good drafting, and the release of Colette Pattern’s Rue dress has brought these thoughts to a head.
You guys – I’ve finally found my perfect match. Every sewist knows the struggle with patterns that aren’t quite drafted for their body type – the restrictive arms, the too-wide neckline, and the dress that looks cute on the envelope, but looks more like a muu-muu on your body. Enter European sewing magazines: well-drafted, stylish, and the perfect fit for my body.
Warning: contains experiences of gaslighting and abuse. There is a GIF near the end.
Recently, I had an altercation with a family member on Facebook. They published a meme which is all too common on social media: the inspirational disabled person. The image was of a Paralympic horse rider, with the caption, “no excuses.”