This week I turned the ripe old age of 27. I don’t usually make a fuss over my birthday, primarily because it reminds me of how long I’ve been sick, but this year I have a special request.
As you may or may not know, I am sick and getting sicker. Since my last relapse in October, I have lost a great deal of functionality. The regression shows no signs of stopping, and I am very scared where I will end up.
So today I am asking you, if you can, to make a donation to the National Centre for Neuroimmunology and Emerging Diseases (NCNED). This medical research centre based at Griffith University, Queensland, has already discovered biomarkers for ME/CFS, and has just announced they will be working on a diagnostic test for the disease.
This research means the world to ME/CFS sufferers such as myself. Medical help is limited, and research into this disease is the only hope I and other severely affected patients have for relief from this terrible illness.
Thank you for your support over the past few months of blogging, and here’s to many more!
PS Seamstress Erin is currently hosting an initiative called #sewingcommunity gives. She is encouraging other sewists to donate to a cause of their choice, in the name of the sewing community. I’m unsure if medical research counts, but as she encourages to give to whatever organisation you wish, it might be worth checking out her post. If you fill out her survey after donating, you go in the running to win a sewing pattern bundle.